Bioethics and Disability

Toward a Disability-Conscious Bioethics

Nonfiction, Reference & Language, Law, Medical Law & Legislation, Science & Nature, Science
Cover of the book Bioethics and Disability by Alicia Ouellette, Cambridge University Press
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Author: Alicia Ouellette ISBN: 9781139124324
Publisher: Cambridge University Press Publication: April 25, 2011
Imprint: Cambridge University Press Language: English
Author: Alicia Ouellette
ISBN: 9781139124324
Publisher: Cambridge University Press
Publication: April 25, 2011
Imprint: Cambridge University Press
Language: English

Bioethics and Disability provides tools for understanding the concerns, fears and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children and adults with disabilities, it proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases.

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Bioethics and Disability provides tools for understanding the concerns, fears and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children and adults with disabilities, it proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases.

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