Comparative Issues in the Governance of Research Biobanks

Property, Privacy, Intellectual Property, and the Role of Technology

Nonfiction, Reference & Language, Law, Media & the Law, Health & Well Being, Medical
Cover of the book Comparative Issues in the Governance of Research Biobanks by , Springer Berlin Heidelberg
View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart
Author: ISBN: 9783642331169
Publisher: Springer Berlin Heidelberg Publication: January 30, 2013
Imprint: Springer Language: English
Author:
ISBN: 9783642331169
Publisher: Springer Berlin Heidelberg
Publication: January 30, 2013
Imprint: Springer
Language: English

In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.

More books from Springer Berlin Heidelberg

Cover of the book Signaling Pathways in Liver Diseases by
Cover of the book Pharmacotherapy of Pulmonary Hypertension by
Cover of the book Retinal Detachment Surgery by
Cover of the book Fullerenes and Other Carbon-Rich Nanostructures by
Cover of the book Photovoltaic Solar Energy Conversion by
Cover of the book Degenerative Erkrankungen der Halswirbelsäule by
Cover of the book Simultaneous Statistical Inference by
Cover of the book Geology of Holocene Barrier Island Systems by
Cover of the book Astrophysics of Black Holes by
Cover of the book Source Control by
Cover of the book Studying Cell Metabolism and Cell Interactions Using Microfluidic Devices Coupled with Mass Spectrometry by
Cover of the book Probiotics by
Cover of the book Modern Oriental Corporate Culture by
Cover of the book TYPIX Standardized Data and Crystal Chemical Characterization of Inorganic Structure Types by
Cover of the book Emissions Trading by
We use our own "cookies" and third party cookies to improve services and to see statistical information. By using this website, you agree to our Privacy Policy