Genetic Data and the Law

A Critical Perspective on Privacy Protection

Nonfiction, Reference & Language, Law, Medical Law & Legislation, Health & Well Being, Medical
Cover of the book Genetic Data and the Law by Mark Taylor, Cambridge University Press
View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart
Author: Mark Taylor ISBN: 9781139334181
Publisher: Cambridge University Press Publication: March 8, 2012
Imprint: Cambridge University Press Language: English
Author: Mark Taylor
ISBN: 9781139334181
Publisher: Cambridge University Press
Publication: March 8, 2012
Imprint: Cambridge University Press
Language: English

Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.

More books from Cambridge University Press

Cover of the book Religion, War, and Ethics by Mark Taylor
Cover of the book Making Early Medieval Societies by Mark Taylor
Cover of the book Exploratory Social Network Analysis with Pajek by Mark Taylor
Cover of the book Texts, Editors, and Readers by Mark Taylor
Cover of the book Kant’s Religion within the Boundaries of Mere Reason by Mark Taylor
Cover of the book The Burdens of Empire by Mark Taylor
Cover of the book The Outbreak of the First World War by Mark Taylor
Cover of the book Property Rights in Post-Soviet Russia by Mark Taylor
Cover of the book Abortion Politics, Mass Media, and Social Movements in America by Mark Taylor
Cover of the book Slavery's Metropolis by Mark Taylor
Cover of the book Astral Sciences in Early Imperial China by Mark Taylor
Cover of the book Colonizing Consent by Mark Taylor
Cover of the book The Poems by Mark Taylor
Cover of the book Foundations of Comparative Politics by Mark Taylor
Cover of the book Social Influence on Close Relationships by Mark Taylor
We use our own "cookies" and third party cookies to improve services and to see statistical information. By using this website, you agree to our Privacy Policy