Governing Biobanks

Understanding the Interplay between Law and Practice

Nonfiction, Reference & Language, Law, Medical Law & Legislation
Cover of the book Governing Biobanks by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart, Bloomsbury Publishing
View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart
Author: Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart ISBN: 9781847318848
Publisher: Bloomsbury Publishing Publication: February 3, 2012
Imprint: Hart Publishing Language: English
Author: Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
ISBN: 9781847318848
Publisher: Bloomsbury Publishing
Publication: February 3, 2012
Imprint: Hart Publishing
Language: English

Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.

More books from Bloomsbury Publishing

Cover of the book Death of Cecilia by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book The TinyWing Fairies by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book War in Japan 1467–1615 by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book Resting on the Future by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book Royal Books and Holy Bones by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book Mimi and the Piano by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book Bloomsbury Curriculum Basics: Teaching Primary History by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book The List by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book The Essential Hyland by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book Jesus as Mirrored in John by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book British Light Tanks 1927–45 by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book Fredericksburg 1862 by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book Vampire Stories to Tell in the Dark by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book Cities Interrupted by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
Cover of the book The Acts of The Apostles: An Introduction and Study Guide by Susan Gibbons, Dr. Jane Kaye, Dr. Catherine Heeney, Dr Andrew Smart
We use our own "cookies" and third party cookies to improve services and to see statistical information. By using this website, you agree to our Privacy Policy