Privacy, Confidentiality, and Health Research

Nonfiction, Reference & Language, Law, Health, Medical Law & Legislation
Cover of the book Privacy, Confidentiality, and Health Research by Dr William W. Lowrance, Cambridge University Press
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Author: Dr William W. Lowrance ISBN: 9781139508247
Publisher: Cambridge University Press Publication: June 21, 2012
Imprint: Cambridge University Press Language: English
Author: Dr William W. Lowrance
ISBN: 9781139508247
Publisher: Cambridge University Press
Publication: June 21, 2012
Imprint: Cambridge University Press
Language: English

The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.

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