The Story Within

Personal Essays on Genetics and Identity

Nonfiction, Health & Well Being, Medical, Medical Science, Genetics, Science & Nature, Science, Other Sciences, History
Cover of the book The Story Within by , Johns Hopkins University Press
View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart
Author: ISBN: 9781421410975
Publisher: Johns Hopkins University Press Publication: December 1, 2013
Imprint: Language: English
Author:
ISBN: 9781421410975
Publisher: Johns Hopkins University Press
Publication: December 1, 2013
Imprint:
Language: English

The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it.

People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value. They write hoping to expand conversations about genetics and identity—to deepen debate and generate questions. They or their families are affected by Huntington’s disease, Alzheimer’s disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia. All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.

Contributors

Misha Angrist, Amy Boesky, Kelly Cupo, Michael Downing, Clare Dunsford, Mara Faulkner, Christine Kehl O’Hagan, Charlie Pierce, Kate Preskenis, Emily Rapp, Jennifer Rosner, Joanna Rudnick, Anabel Stenzel (deceased), Isabel Stenzel Byrnes, Laurie Strongin, Patrick Tracey, Alice Wexler

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it.

People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value. They write hoping to expand conversations about genetics and identity—to deepen debate and generate questions. They or their families are affected by Huntington’s disease, Alzheimer’s disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia. All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.

Contributors

Misha Angrist, Amy Boesky, Kelly Cupo, Michael Downing, Clare Dunsford, Mara Faulkner, Christine Kehl O’Hagan, Charlie Pierce, Kate Preskenis, Emily Rapp, Jennifer Rosner, Joanna Rudnick, Anabel Stenzel (deceased), Isabel Stenzel Byrnes, Laurie Strongin, Patrick Tracey, Alice Wexler

More books from Johns Hopkins University Press

Cover of the book Essential Documents in the History of American Higher Education by
Cover of the book Emmy Noether's Wonderful Theorem by
Cover of the book Don't Think by
Cover of the book Unconscious Crime by
Cover of the book Austerity Blues by
Cover of the book A Woman's Guide to Living with HIV Infection by
Cover of the book Academic Capitalism in the Age of Globalization by
Cover of the book The Fairy Way of Writing by
Cover of the book Cultivating Inquiry-Driven Learners by
Cover of the book The 160-Character Solution by
Cover of the book The Science of Navigation by
Cover of the book Black Soundscapes White Stages by
Cover of the book Operation Crisis by
Cover of the book Light It Up by
Cover of the book Digital Politics in Western Democracies by
We use our own "cookies" and third party cookies to improve services and to see statistical information. By using this website, you agree to our Privacy Policy