Weak Bones, Strong Wills, The Stories of XLH

Nonfiction, Health & Well Being, Health, Ailments & Diseases, Biography & Memoir
Cover of the book Weak Bones, Strong Wills, The Stories of XLH by The XLH Network, Inc., The XLH Network, Inc.
View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart
Author: The XLH Network, Inc. ISBN: 9781370995004
Publisher: The XLH Network, Inc. Publication: September 14, 2017
Imprint: Smashwords Edition Language: English
Author: The XLH Network, Inc.
ISBN: 9781370995004
Publisher: The XLH Network, Inc.
Publication: September 14, 2017
Imprint: Smashwords Edition
Language: English

X-Linked Hypophosphatemia (XLH) and the related autosomal and tumor-induced hypophosphatemias are metabolic bone disorders characterized by the wasting of phosphorus, leading to soft, poorly mineralized bones.

Our bones are soft, our lives are hard, but we are strong and resilient. We persevere, despite all the challenges. But if there's one thing that can slow us down, it's the lack of solid information about the real-life consequences of our rare medical condition. That's why we're here to tell the real stories of XLH and the people affected by it. Not the medical jargon, not the numbers and charts, but the real-life experiences of patients and their families.

The mission of The XLH Network, Inc., a 501(c)(3) non-profit, is to promote XLH awareness and education for affected families, medical professionals, and the community at-large; to support physicians and other providers of medical care for better diagnosis and treatment; to create resources and a community for affected individuals and their families so they can understand and cope with the complications of the disease; and to foster the search for a cure.

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

X-Linked Hypophosphatemia (XLH) and the related autosomal and tumor-induced hypophosphatemias are metabolic bone disorders characterized by the wasting of phosphorus, leading to soft, poorly mineralized bones.

Our bones are soft, our lives are hard, but we are strong and resilient. We persevere, despite all the challenges. But if there's one thing that can slow us down, it's the lack of solid information about the real-life consequences of our rare medical condition. That's why we're here to tell the real stories of XLH and the people affected by it. Not the medical jargon, not the numbers and charts, but the real-life experiences of patients and their families.

The mission of The XLH Network, Inc., a 501(c)(3) non-profit, is to promote XLH awareness and education for affected families, medical professionals, and the community at-large; to support physicians and other providers of medical care for better diagnosis and treatment; to create resources and a community for affected individuals and their families so they can understand and cope with the complications of the disease; and to foster the search for a cure.

More books from Biography & Memoir

Cover of the book Einführung in die philosophische Ethik by The XLH Network, Inc.
Cover of the book Hiking with Nietzsche by The XLH Network, Inc.
Cover of the book La Philosophie sociale du XVIIIe siècle et la Révolution by The XLH Network, Inc.
Cover of the book The Comic Dna of Lucille Ball by The XLH Network, Inc.
Cover of the book George Best 153 Success Facts - Everything you need to know about George Best by The XLH Network, Inc.
Cover of the book Hallelujah Junction by The XLH Network, Inc.
Cover of the book Chateaubriand et Madame de Custine by The XLH Network, Inc.
Cover of the book Who Can Battle with the Lord by The XLH Network, Inc.
Cover of the book J. Robert Oppenheimer and the American Century by The XLH Network, Inc.
Cover of the book Approaching Neverland by The XLH Network, Inc.
Cover of the book Works of Vincent van Gogh by The XLH Network, Inc.
Cover of the book Into the Mourning Light by The XLH Network, Inc.
Cover of the book The Puppet Show Of Memory by The XLH Network, Inc.
Cover of the book Bedbug Hell (How I Survived It) by The XLH Network, Inc.
Cover of the book Someone Else's Child by The XLH Network, Inc.
We use our own "cookies" and third party cookies to improve services and to see statistical information. By using this website, you agree to our Privacy Policy